North East Lincolnshire Parent Participation Forum

The North East Lincolnshire Parent Participation Forum provides opportunities locally for parents of disabled children to have their voices heard and help influence local decisions that may affect their families. Parent Carers can help pinpoint problems they frequently experience which provides professionals with useful knowledge to help them improve how services are delivered.

The Forum enables parents to find out more about the services, facilities and activities on offer to families of children with additional needs and to chat with other parent carers about issues affecting them and their family.

With successful parent participation, parents and professionals work together to recognise each other’s expert knowledge. This enables informed decisions to be made which make the best use of time and money to support all families of children with disabilities and additional needs in North East Lincolnshire.

Please visit the Forum’s website ( or Facebook page ( for more information about its activities and other matters of interest to parent carers.

The Forum can also be contacted on 07583 474892 or

Special Ed Needs Coffee Morning

This group is run by Parent Carers for Parent Carers. It meets usually on the second Tuesday of every month at 10 am to noon at the Carers’ Support Service, 1 Town Hall Square, Grimsby. Meet other parents, make friends and gain confidence and get advice on school support, Special Educational Needs and disability law. Telephone 01472 242277 for more information. This group is supported by, but independent of, the North East Lincolnshire Parent Participation Forum.

Useful Websites

Contact supports families with the best possible guidance and information. It brings families together to support each other, and helps families to campaign, volunteer and fundraise to improve life for themselves and others.

Cerebra Toolkits and Guides
Parent Guides – Cerebra publish a series of guides and factsheets to help families of children with brain conditions with common problems they may be facing. They offer comprehensive, up-to-date advice and research-driven strategies to help you deal with a wide range of issues. Visit the Cerebra website for more information –

Family and Childcare Trust
The Family and Childcare Trust works to make the UK a better place for families, focusing on childcare and the early years to make a difference to families’ lives now and in the long term.

Council for Disabled Children
An online library of resources that you can access to find out more about disability policy and practice which includes a selection of materials specifically written with parents in mind.

Disabled Children: A Legal Handbook. 2nd Edition
An authoritative yet accessible guide to the legal rights of disabled children and their families in England and Wales.

SEND Code of Practice
Guidance on the special educational needs and disability (SEND) system for children and young people aged 0 to 25, from 1 September 2014.

The Care Act 2014

Preparing for Adulthood & Children and Families Act
The Preparing for Adulthood programme provides expertise and support to local authorities and their partners to embed preparing for adulthood from the earliest years. The site also contains a useful fact sheet on the Children and Families Act.